The final Policy clarifies that exceptions may be requested in cases where the submission of genomic data would not meet the criteria for the Institutional Certification. There aremany benefits to sharingdatait increases not only both the utility and reliability of your work, but also its impact and visibility and your profile and credibility as a researcher. Research data management (or RDM) is a term that describes the By contrast, about half of adults working in hospitality (47%), manufacturing or farming (46%) or retail or wholesale trade (46%) see training and skills development as an essential part of their future work life.3. NSF 00-317 | June 23, 2000, Detailed Statistical Tables | Identifying Personal Genomes by Surname Inference. Those who said they have more than one job but consider one to be their primary job were asked to think about only their primary job when answering questions about their current job. This is true across levels of educational attainment: Four-year college graduates say they would pursue a graduate degree, two-year college graduates say they would try to get a four-year degree, and high school graduates say they would go to college. Survey software Leading survey software to help you turn data into decisions. NIH Intramural Policy on Large Database Sharing. Democrats and independents who lean Democratic are more likely than Republicans and Republican leaners to say public schools, colleges, and the federal and state governments should have a lot of responsibility for making sure U.S. workers are prepared for todays jobs. These changes are affecting the very nature of jobs by rewarding social, communications and analytical skills. outreach materials, number of stakeholders reached) data from NIFA-funded projects is critical to achieving NIFAs vision to catalyze transformative discoveries, education, and engagement to address agricultural challenges. The link(s) below go to OEWS data maps for employment and wages by state and area. Additionally, some commenters were uncertain about whether the Policy would apply to research funded by multiple sources. In general, investigators should make non-human genomic data publicly available no later than the date of initial publication. Click to read about the Quick Stats Tools Want to receive reports automatically? Young adults are more likely than their older counterparts to see skills and training as essential (61% among those ages 18 to 29), perhaps because of the longer trajectory they have ahead of them. NSF 04-313 | April 30, 2004, Detailed Statistical Tables | HeartMath Institute is a 501(c)(3) nonprofit organization and has developed reliable, scientifically validated tools since 1991 to help people reduce and avoid stress while experiencing increased peace, satisfaction and enjoyment. Institutions submitting the data should determine whether data should be withdrawn from NIH repositories and notify NIH accordingly. We recommend the use of SHELXL (2014 or later) for data processing, which embeds both the results file and structure factors into the finalized crystallographic information file (CIF) (seehttp://journals.iucr.org/c/services/shelxl.htmlfor more information). NSF 98-309 | April 27, 1998, InfoBriefs | 24. NIH has the authority to establish additional policies with expectations that are not required by laws or regulations but advance the agencys mission to enhance health, lengthen life, and reduce illness and disability. Celebrating National Apple Month, NIFA Celebrates Hall of Fame and Partnership Awards Recipients, Learn How NIFA Supports Indigenous Peoples, Dr. Carol Benesh Inducted into National 4-H Hall of Fame, Hispanic Heritage Month Profile: Germn Sandoya Miranda, NIFA-Funded Projects Advance U.S. Workers are increasingly taking on a variety of nontraditional jobs: Some work as independent contractors, some are employed through a contract firm and others are on-call workers or serve as temporary help through an agency. Investigators should work with NIH Program or Project Officials for specific guidance. Several commenters asked for a definition of an NIH-designated data repository and for guidance on determining which non-NIH repositories are acceptable as well as examples of such repositories. MGIs mission is to help leaders in the commercial, public, and social sectors develop a deeper understanding of the evolution of the global economy and to provide a fact base that contributes to decision making on critical management and policy issues. Importantly, such repositories conform to a minimum set of best practices and provide appropriate standards of curation (e.g. NSF 13-336 | September 24, 2013, InfoBriefs | Everyone who took part in this survey is a member of Pew Research Centers American Trends Panel (ATP), an online survey panel that is recruited through national, random sampling of residential addresses. At the same time, the national survey conducted May 25 to June 29, 2016, among 5,006 U.S. adults (including 3,096 employed adults) shows how deeply Americans have internalized these trends: Many see personal upgrading as a constant: More than half (54%) of adults in the labor force say it will be essential for them to get training and develop new skills throughout their work life in order to keep up with changes in the workplace. Next on the list are training in science and math 69% believe that is extremely or very important and knowing computer programming (64%). For clinical specimens and cell lines lacking consent for research and collected before the effective date of the Policy, several commenters were concerned that the Policy was unclear about whether data from such specimens can be deposited in NIH repositories. For studies initiated after the effective date of the GDS Policy, NIH expects investigators to obtain participants consent for their genomic and phenotypic data to be used for future research purposes and to be shared broadly. There were also several comments about the draft GDS Policy proposal to grandfather data from de-identified clinical specimens and cell lines collected or generated before the effective date of the GDS Policy. British Journal of Cancer. The NSDUH SAE tool allows you to quickly see data by state and substate areas. 67. Correlation (often referred to as correlational study, correlation research, bivariate correlation This is likely to have contributed to the shrinking of the gender pay gap from 1980 to 2015 given that wages are rising much faster in jobs requiring social and analytical skills. Examples of analytical skills are critical thinking, mathematics and computer programming. 46. According to experts. About Pew Research Center Pew Research Center is a nonpartisan fact tank that informs the public about the issues, attitudes and trends shaping the world. Roughly a third of adults (35%) say it should be to help individuals grow personally and intellectually, while 50% say it should be to teach job-related skills. It promotes the use of consent for broad sharing to enable the greatest potential public benefit. NSF 01-331 | July 1, 2001, Detailed Statistical Tables | C. Conditions for Use of Unrestricted-Access Data One area of particularly intensive study is the Cottonwood Lake study area in Stutsman County, North Dakota. New data from Lighthouse Research & Advisory finds the compensation landscape is changing. We strongly recommend that all new small molecule single crystal X-ray diffraction data be deposited with the Cambridge Crystallographic Data Centre (CCDC;https://www.ccdc.cam.ac.uk/deposit) prior to submission of your article. Animal Welfare, USDA Nutrition Programs Work to Reduce Hunger and Improve Healthy Food Access, Hispanic Heritage Month Profile: Ashlee Linares-Gaffer, The Power of Young Voices in Nutrition Security, Dr. Robert J. Jones to Deliver 2022 William H. Hatch Memorial Lecture, New AFRI Priority Area Supports Rapid Response to Extreme Weather, Other Disasters. 69. Background In 2015, the Tri-Council funding agencies announced the intention to release guidelines requiring Research Data Management plans for grant applications soon. Having data available in a structured database carries significant benefits. An IRB, privacy board, and/or equivalent body, as applicable, has reviewed the investigators proposal for data submission and assures that: The protocol for the collection of genomic and phenotypic data is consistent with 45 CFR Part 46; Data submission and subsequent data sharing for research purposes are consistent with the informed consent of study participants from whom the data were obtained; Consideration was given to risks to individual participants and their families associated with data submitted to NIH-designated data repositories and subsequent sharing; To the extent relevant and possible, consideration was given to risks to groups or populations associated with submitting data to NIH-designated data repositories and subsequent sharing; and. Occupations were rated as requiring either an average to above-average level of preparation or a below-average level of preparation. NIH Big Data to Knowledge. https://grants.nih.gov/grants/guide/notice-files/NOT-OD-03-032.html, http://sourcebook.od.nih.gov/ethic-conduct/large-db-sharing.htm, https://grants.nih.gov/grants/guide/notice-files/NOT-OD-04-042.html, https://grants.nih.gov/grants/guide/notice-files/NOT-OD-07-088.html, http://www.federalregister.gov/a/2013-22941, https://grants.nih.gov/grants/guide/notice-files/NOT-OD-13-119.html, http://gds.nih.gov/pdf/GDS_Policy_Public_Comments.PDF, http://gds.nih.gov/pdf/supplemental_info_GDS_Policy.pdf, http://www.niaid.nih.gov/labsandresources/resources/dmid/pages/data.aspx, http://bd2k.nih.gov/about_bd2k.html#sdcmembership, http://www.broadinstitute.org/news/globalalliance, http://bd2k.nih.gov/about_bd2k.html#areas, http://gds.nih.gov/pdf/PTC_for_IRBs_and_Institutions_revised5-31-11.pdf, http://www.hhs.gov/ohrp/humansubjects/guidance/45cfr46.html#46.102, http://www.gpo.gov/fdsys/pkg/CFR-2002-title45-vol1/pdf/CFR-2002-title45-vol1-sec164-514.pdf, http://www.hhs.gov/ohrp/humansubjects/commonrule/, http://www.hhs.gov/ohrp/humansubjects/anprm2011page.html, http://gds.nih.gov/pdf/standard_data_use_limitations.pdf, http://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000501.v1.p1, http://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/collection.cgi?study_id=phs000688.v1.p1, http://www.supremecourt.gov/opinions/12pdf/12-398_1b7d.pdf, http://www.gpo.gov/fdsys/pkg/CFR-2011-title45-vol1/xml/CFR-2011-title45-vol1-part74.xml#seqnum74.62, http://www.ncbi.nlm.nih.gov/Traces/sra/sra.cgi, http://www.ncbi.nlm.nih.gov/Traces/trace.cgi, http://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/GetPdf.cgi?document_name=ConfidentialityCertificate.pdf, https://grants.nih.gov/grants/policy/coc/, http://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/GetPdf.cgi?document_name=dbgap_2b_security_procedures.pdf, http://www.gpo.gov/fdsys/pkg/CFR-2011-title45-vol1/pdf/CFR-2011-title45-vol1-part164.pdf, http://gwas.nih.gov/pdf/NIH_PTC_in_Drafting_DUL_Statements.pdf, https://dbgap.ncbi.nlm.nih.gov/aa/wga.cgi?page=login, http://gds.nih.gov/pdf/Genomic_Data_User_Code_of_Conduct.pdf, http://gwas.nih.gov/pdf/Model_DUC_7-26-13.pdf, http://www.ott.nih.gov/sites/default/files/documents/pdfs/70fr18413.pdf, https://grants.nih.gov/grants/policy/nihgps_2012/nihgps_ch8.htm#_Toc271264950, Proposals for contracts that are submitted to NIH on or after January 25, 2015; and. Presidential Commission for the Study of Bioethical Issues. Data Tables | Several commenters were concerned that the draft GDS Policy was unclear about which standard should be used to ensure the de-identification of data. D Associate Director, Information Services and Scholarly Communication University of Central Florida Libraries February 11, 2014 University of Central Florida Libraries Discover. 101(9): 1505-1512. 29. In addition, the reasons for which the data cannot be made publicly available should be given. A registry of research data repositories can be found atwww.re3data.org, and authors can search this by using theDataCite Repository Finder. In the meantime, the average hourly wage of workers in jobs in which physical skills are important increased only 7%, from $16 in 1990 to $18 in 2015. Healthcare Cost and Utilization Project (HCUP) is the Nation's most comprehensive source of hospital data. curriculum and training products, number of students graduated); and extension (i.e. Bachelor's degree: $93,000: Market Research Analysts: Market research analysts study consumer preferences, business conditions, and other factors to assess potential sales of a product or service. The skill ratings utilize the latest available O*NET data and do not change over time. The Public Libraries Survey (PLS) examines when, where, and how library services are changing to meet the needs of the public. NIH recognizes that consent for future research uses and broad sharing may not be appropriate or obtainable in all circumstances. NSF 98-332 | December 1, 1998, Detailed Statistical Tables | The 1000 Genomes Project at http://www.1000genomes.org/. Request for Information: Input on the Draft NIH Genomic Data Sharing Policy. Pew Research Center does not take policy positions. Data Repositories Draft NIH Genomic Data Sharing Policy. NSB 2021-4 | October 28, 2021, Special Reports | Occupational employment projections are developed for all states by Labor Market Information (LMI) or individual state Employment Projections offices. Final NIH Statement on Sharing Research Data. Located on six hundred acres along the James River Valley near Jamestown, North Dakota, the Northern Prairie Wildlife Research Center is one of seventeen USGS Science Centers that develop and disseminate the scientific information needed to understand, conserve, and manage the Nations rich biological resources. Data Repositories NIH recognizes that in some circumstances broad sharing may not be consistent with the informed consent of the research participants whose data are included in the dataset. NSF 01-319 | February 26, 2001, InfoBriefs | A smaller share of Americans believe that mastering social media (37%) and knowing a foreign language (36%) are at least very important for success in the modern workplace. Developing educational materials or tools to guide the process for obtaining informed consent was also suggested. (2013). This statement describes if and how others can access the data supporting the conclusions of the study, including: Below are template examples that authors may use to write a data availability statement. Currently, NIH requests Institutional Review Boards (IRBs) to consider ethical concerns related to groups or populations when determining whether a studys consent documents are consistent with NIH policy.23 In addition, NIH has clarified in the final GDS Policy that exceptions may be requested for the submission and subsequent sharing of data if the criteria in the Institutional Certification cannot be met (e.g., an IRB or equivalent body cannot assure that submission of data and subsequent sharing for research purposes are consistent with the informed consent of study participants). NSF 09-300 | November 14, 2008, Detailed Statistical Tables | The Supplemental Information to the NIH Genomic Data Sharing Policy (Supplemental Information)10 provides examples of research projects involving large-scale genomic data that are subject to the Policy. An official website of the United States government. Further information is available in the Data Use Certification. Many occupations have overlapping skill requirements (e.g., it is important for postsecondary teachers to have higher levels of both social and analytical skills). The publication and (+1) 202-419-4300 | Main It conducts public opinion polling, demographic research, media content analysis and other empirical social science research. After that, views differ on the roles that other entities, such as companies and different levels of government, should play in preparing people for the workforce. NIFA-Funded Projects Advance Organic Agriculture in U.S. Study Reveals Agriculture-Related Injuries More Numerous than Previously Known, Georgia Extension Supporting County Governments and Poultry Industry, Celebrating National Hispanic-serving Institutions Week, The Benefits of International Collaboration and Global Engagement, Particulate Matter Affecting Air, Water and Soil Quality, USDA NIFA Preparing Next Generation of Agricultural Workforce, Supporting Wildlife Through Conservation and Management, Celebrating the Second Morrill Act of 1890, Capacity-building Grants Program Sees 25 Years of Impact at 1890 LGUs, NIFA Programs Work to Increase Food and Nutrition Security, National Clean Plant Center for Berries Expands Capabilities, Virginia Tech-led Group that Researched Boxwood Blight Wins USDA Award, Research and Extension Supports Local Food Systems, Agriculture Secretary Tom Vilsack Proclaims October 2 - 8 as National 4-H Week, Helping Western Tribal Communities Understand the Impacts of and Adaptation Options for Climate Change, A New Cash Oilseed Cover Crop for Midwest Corn and Soybean Rotations, Langston University Excels in Daylily Research, SDSU Researchers Working to Fill Educational Gaps for Rural Students, Oregon State Researchers Discover Compounds Contributing to Smoke Taint in Wine and Grapes, How the Omicron Subvariant BA.5 Became a Master of Disguise and What It Means for the Current COVID-19 Surge. NSF 07-302 | December 18, 2006, InfoBriefs | 32. dbGaP Collection: Compilation of Individual-Level Genomic Data for General Research Use. 15. Increased access to scientific research results (i.e. 22. NSF 19-321 | June 17, 2019, InfoBriefs | Data Withdrawal Workforce Powerful insights to help you create the best employee experience. The GDS Policy expects that basic sequence and certain related data made available through NIH-designated data repositories and all conclusions derived from them will be freely available. NIH provides additional information on issues related to the respect for research participant interests in its Points to Consider for IRBs and Institutions in their Review of Data Submission Plans for Institutional Certifications.24. Today, 60% of employed Americans say it is not at all likely that they will lose their job or be laid off in the next 12 months. Standard Data Use Limitations. 21. The .gov means its official. The study employed the quantitative approach in which the data was gathered through an online survey questionnaire and analysed using natural language processing techniques. Note that, if needed during the review process, authors must provide datasets to the editor or editorial staff upon request whether or not the authors intend to share them on publication. Those with lower levels of education are more likely to be temporary workers or out of work altogether. Women, who represent 47% of the overall workforce, make up the majority of workers in jobs where social or analytical skills are relatively more important, 55% and 52%, respectively. Americans have somewhat mixed attitudes about the effectiveness of traditional four-year colleges and other higher education institutions. Wetland ecosystems are also influenced 12201 Sunrise Valley Drive Reston, VA 20192, Region 2: South Atlantic-Gulf (Includes Puerto Rico and the U.S. Virgin Islands), Region 12: Pacific Islands (American Samoa, Hawaii, Guam, Commonwealth of the Northern Mariana Islands), Towards critical white ice conditions in lakes under global warming, Lessons learned from wetlands research at the Cottonwood Lake Study Area, Stutsman County, North Dakota, 19672021, Multiproxy paleolimnological records provide evidence for a shift to a new ecosystem state in the Northern Great Plains, USA, Tools for the Mitigation of Habitat-Based Impacts to Birds, Climate-driven state shifts in the Prairie Pothole Region: assessing future impacts relevant to the management of wetland habitats critical to waterfowl, Temporal and spatial patterning of aquatic macroinvertebrate communities in response to changing environmental conditions. Science conducted byNorthern Prairie scientists can be grouped into sixprimary research topics: Northern Prairie Wildlife Research Center, The quality of lake ice is of uppermost importance for ice safety and under-ice ecology, but its temporal and spatial variability is largely unknown. Those who said they have more than one but consider one to be their primary job were asked to think about only their primary job when answering questions about their current job. Further information about NIH-designated repositories, including examples of such repositories, is available on the GDS website,17 and additional information about non-NIH-designated data repositories will be incorporated in outreach and training materials for NIH staff and investigators and made available on the GDS website. Investigators seeking NIH funding should contact appropriate IC Program Official or Project Officer37 as early as possible to discuss data sharing expectations and timelines that would apply to their proposed studies. The funding IC will determine whether the investigators justifications for the use of clinical specimens or cell lines for which no consent for research was obtained are acceptable, as provided in their funding application and Institutional Certification. 50. The work of data management has a wide scope, covering factors such as how to:Create, access, and update data across a diverse data tierStore data across multiple clouds and on premisesProvide high availability and disaster recoveryUse data in a growing variety of apps, analytics, and algorithmsEnsure data privacy and securityArchive and destroy data in accordance with retention schedules and compliance requirements Research Edition Intelligent market research surveys that uncover actionable insights. Article of the Year Award: Outstanding research contributions of 2021, as selected by our Chief Editors. Bachelor's degree: $63,920 52. NSF 21-329 | May 12, 2021, Detailed Statistical Tables | (2009). The average hourly wage of workers in jobs requiring higher levels of analytical skills increased from $23 in 1990 to $27 in 2015, or 19%. The importance of a given skill to a job is ascertained from the latest ratings in the Department of Labors Occupational Information Network (O*NET). Specific considerations may vary with the type of study and whether the data are obtained through prospective or retrospective data collections. Data Repositories. ICs may continue to accept data from studies with consents that stipulate limitations on future uses and sharing, and NIH will maintain the data access system that enables more limited sharing and secondary use. Others suggested that the Policy should state that genomic information cannot be de-identified. NIH is aware of the burden that may be imposed on DACs by additional data access requests and will continue to monitor this possibility and, as needed, develop methods to decrease DAC burden and improve performance for investigators, institutions, and NIH ICs. Laboratory websites or personal data stores (such as Google Drive, Dropbox and OneDrive) are not sufficient for these purposes. In addition, a measure to protect the confidentiality of de-identified data obtained through controlled access has been added by encouraging approved users to consider requesting a Certificate of Confidentiality. According to government data, the share of workers with an employer-sponsored health insurance plan (either through their own employer or through the employer of a family member) fell from 77% in 1980 to 69% in 2013. GWAS has the same definition in this policy as in the 2007 GWAS Policy: a study in which the density of genetic markers and the extent of linkage disequilibrium should be sufficient to capture (by the r2 parameter) a large proportion of the common variation in the genome of the population under study, and the number of samples (in a case-control or trio design) should provide sufficient power to detect variants of modest effect. Others asserted that genomic data could not be fully de-identified. These findings tie to previous Pew Research Center work showing that noteworthy majorities of adults think colleges fail to provide students with good value for the money and that college is too expensive. Culture of excellence inspires consistent and reliable end-to-end E2E supply chain performanceOperational and process skills cultivate deep functional expertiseRelationship and communications skills facilitate E2E integrationInspirational character drives bold change Secure .gov websites use HTTPS On the one hand, American workers confidence in their own job security is relatively high these days, especially compared with the low point in the early 1980s. See http://gwas.nih.gov/pdf/Model_DUC_7-26-13.pdf. Federal Register Notice. NIH Data Access Committees (DACs) review DARs on behalf of submitting institutions by using the data use limitations provided by the institutions to determine whether the DAR is consistent with the limitations to ensure that participants wishes are respected. Compiled Public Comments on the Draft Genomic Data Sharing Policy. Location information or other unique data that may place vulnerable species or sites at risk (including endangered animals or plants, rare fossil or mineral locations, designated archaeological sites, and others). NIFAs investments in transformative science directly support the long-term prosperity and global preeminence of U.S. agriculture. Furthermore, less educated workers are also among the most likely to say that their jobs are imperiled. The Prairie Pothole Region (PPR) covers parts of five states and three Canadian provinces. It most recently peaked at 57% in 2001, up from 50% in 1980.7 However, the share fell to 45% by 2015. Research Edition Intelligent market research surveys that uncover actionable insights. Three-in-ten are somewhat satisfied, and the remainder say they are somewhat dissatisfied (9%) or very dissatisfied (6%). Requests for data, [6/12 months] after publication of this article, will be considered by the corresponding author. If you have any questions, please contacthelp@hindawi.com. It also looks at trends in employer-provided benefits, job tenure, hiring practices and alternative work arrangements. Any resources that may be needed to support a proposed genomic data sharing plan (e.g., preparation of data for submission) should be included in the project's budget. Respondents who did not rank any skills extremely important but ranked one skill very important were asked about that skill. The responsible Institutional Signing Official61 of the submitting institution should provide an Institutional Certification to the funding IC prior to award consistent with the genomic data sharing plan submitted with the request for funding. In these cases, an assessment by an IRB, privacy board, or equivalent body is needed to ensure that data submission is not inconsistent with the informed consent provided by the research participant. 51. Notably, peoples views are linked to their partisan allegiances. Many are already taking action or being required to do so by their employer or by licensing requirements in their jobs: 45% of employed adults say they got extra training to improve their job skills in the past 12 months. 44. From Concepts to Practice Brandon Mikkelsen and Jay Etchings. The Bond University online Research Data Management Plan available below will assist you with your research data planning. In general, NIH will release data submitted to NIH-designated data repositories no later than six months after the initial data submission begins, or at the time of acceptance of the first publication, whichever occurs first, without restrictions on publication or other dissemination.49. Where there are specific laws regarding access to certain sensitive data and the laws provide standard means for researchers to apply for access. In Quick Stats 2.0, under Program, select "Survey." See http://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/GetPdf.cgi?document_name=ConfidentialityCertificate.pdf. Data Submission Expectations and Timeline Confidentiality Certificate. Chapter 1 includes an analysis of trends in job and wage growth by occupations with an emphasis on skills and preparation. The share covered by their own employers health plan held fairly steady in the 1990s, in contrast to declines before and after the decade. Some of the key themes in this two-pronged analysis: The new analysis of employment data shows that the job categories with the highest growth tend to require higher social skills, analytic savvy and technical prowess. NSF 98-326 | January 1, 1999, Detailed Statistical Tables | Here we conducted a coordinated lake ice quality sampling campaign across the Northern Hemisphere during one of the warmest winters since 1880 and show that lake ice during 2020/2021 commonly consisted of unstable white ice, at times contributing up, Depressional wetlands in the Prairie Pothole Region of North America have a long history of investigation owing to their importance in maintaining migratory-bird populations, especially waterfowl.
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